It has been a while but I have not forgotten that I am somewhat late in giving you a Charlotte update. Charlie is back at preschool and today is her first whole day; making it a three-day week at preschool. Having worked two days this week, Thursday is Uni. day for me! Charlotte’s last scan, four weeks ago, was still clear and this is our second week of NO hospital appointments or tests. She is doing really well and sometimes I find it hard to really express where she is at and how she really is. These words say it well:

The Book of Hours, Bk1, poem 1, stanza1…Denise Levertov

A certain day became a presence to me;

there it was, confronting me – a sky, air, light:

a being. And before it started to descend

from the height of noon, it leaned over

and struck my shoulder as if with

the flat of a sword, granting me

honour and a task. The day’s blow

rang out, metallic – or it was I, a bell awakened,

and what I heard was my whole self

saying and singing what I knew: I can.

The day, personified and knighting the persona, is our Charlotte. A child that virtually always can. Well, at least she thinks that she can! She does this with virtually no frontal lobe, having endured years of chemical and radiation therapy, and with the remaining part of her brain squashed down toward her brain stem….she is the epitome of what life is about. Having a go and always thinking you can. Furthermore, she does this while she skips and sings towards her next adventure. My hope is that she can stay that way!!!

We have a lot of work to get her ready for school but she is doing quite well. Her educational assessment marks her as age-appropriate in intelligence and she just keeps improving now that she is out of treatment. Charlie has her school enrolment interview on Friday…woohooo! It is, in itself, an enormous milestone! Next week marks her 5th Birthday!!! I always feel a combination of tearful joy and sheer relief that she is able to meet these benchmarks; things that I just expected with Madeleine.

Anyway, we wait now until her next MRI in June and have a number of check-ups ahead – oncology, hearing, opthamology, endocrinology and neurology. So, I will write again soon to fill you in.

Thanks for reading and not forgetting Charlie!

Beck and Rod xo