Rod and Charlotte arrived at SCH for bloods and chemo last Monday (7th December) at 8.30 am and there was no bed for Charlotte. So, after a long walk to Coogee and back, a bed finally became available at 2pm. The frustration we have with an overloaded hospital system is still difficult for Rod and I but we do have to get our heads around this element of Charlotte’s medical journey. It is the reality of life at SCH. Time at Hospital is never really without incident for Charlotte and her dri...

YEAH! We managed to make 2 weeks at home and only ONE clinic appointment and specialist meeting. Rod and I are so thrilled and somewhat rested. Madeleine is happy and settled and Charlotte seems like her old self. Well, she is a nice shade of pale grey and working hard to fight off infection with an almost zero white blood cell and neutrophil count! The scars of last week, emotional and physical have had some to time to almost heal and we are so happy for our Charlie. We have posted a photo ...