Browsing Archive: November, 2009

23 November, 2009 – HOME!

Posted by Peta Long on Monday, November 23, 2009, In : Charlotte Update 

Charlotte and I arrived home on Sunday afternoon. I was thrilled and Charlotte seemed somewhat displaced. Rod was at work and Madeleine was still with my parents. Charlie was tired, sullen, unsure about the intense heat; after a week in a very cold isolation room and extraordinarily clingy. She was so traumatised by the week gastro, a leaking port, two operations, a haemoglobin transfusion, chemotherapy and more than eight attempts to access and reaccess her port without anaesthetic ...


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What a week

Posted by Peta Long on Sunday, November 22, 2009, In : Charlotte Update 

On top of the vomiting and diarrhea every day with still no sign of a reprieve. Charlotte did manage to have the operation to install a new port on Friday evening after having the Thursday op canceled. Mind you I was called down to the pre op theater at 3pm (already 1hr late) waited in there for 3hrs during which time i was told that the op was likely to be postponed till Monday, at that point I suggested they the might want to call security because I was about to snap. Charlotte was also at...


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19 November

Posted by Peta Long on Thursday, November 19, 2009, In : Charlotte Update 

On the evening of Beck's last post Charlotte went in for emergency surgery to remove the poracath. We were able to view the portacath post op, it was quite evident that at some stage a needle had pierced the back of the portacath, hence the leak. No doctors or nurses alike have ever seen such an occurrence. In an abstract way it is just as well Charlotte became ill with the roto virus (still tonight she was vomiting), if she was to go in to chemo as per the schedule tomorrow, she will be giv...


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17 November, 2009 - 5 days at home and we are back in again!

Posted by Peta Long on Monday, November 16, 2009, In : Charlotte Update 

We were hoping for a week at home and some peace for Charlotte but that has not panned-out. Rod woke on Sunday morning at 5.20 am ready for his Sunday paddle when Charlotte woke too. She had a fever and was vomitting. So, bags were loaded in the car and off they went to Emergency again. I later swapped with Rod who went home for a quick sleep before night shift. Charlotte was really unwell. She had high fevers and was listless - not like our Charlie! By that evening her temperature was spiki...


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Monday 9 November – Sent Home, Back Again and Now Home!

Posted by Peta Long on Tuesday, November 10, 2009, In : Charlotte Update 

After packing Madeleine’s preschool bag, overnight bag for three days at Nanny/Dars, bags for Hospital and all of Charlotte’s gear, we arrived at SCH last Thursday by 8.30 am. Charlotte had her bloods taken and clinic appointment but by 10.30 it became apparent that there was no bed available to commence her scheduled chemotherapy. After waiting another two hours we were sent home - no bed, no chemo!

I left C2 North with tears running down my face and continued to cry for half of Thursda...


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Saturday 31 October, 2009 – Clinic, Bloods and Hospital Again!!

Posted by Peta Long on Wednesday, November 4, 2009, In : Charlotte Update 

We managed SIX whole days at home and returned for Charlotte’s scheduled clinic appointment and bloods on Thursday. Prior to returning for clinic Charlotte had been really well, happy, eating, drinking and sleeping soundly. However, I did comment to Rod that I thought her white blood cell count had dropped as she suddenly woke with a runny nose and was dark under the eyes. Her bloods on Thursday revealed an extremely low WBC count and NO neutrophils (help fight everything in the body) Whil...


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