Browsing Archive: September, 2009

CONGRATULATIONS TO DAVE, MEL and TEAM!!

Posted by Peta Long on Monday, September 28, 2009, In : Charlotte Update 

Despite hideous winds and some crazy suits the team has raised an amazing sum for children's oncology. There are so many children and their families that will be immensely grateful for the selfless efforts of the team.

Laura and John Chippendale from Concord (halfway point house on the ride) are dear family friends (of the Davies family) THANK YOU!!!

If Mel's rear is a little sore I have no doubt that Dave isn't walking after having witnessed that body hugging clown suit! Great work to the ...


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Friday 25 September, 2009 – ROUND 1 OF CHEMOTHERAPY AND WE ARE HOME!!

Posted by Peta Long on Friday, September 25, 2009, In : Charlotte Update 

Charlotte had her first round of chemo (Vincristine and Carboplatin) on Thursday which took all day on a tree of drips. The nurses had some trouble accessing the port because it had just been put in and it was the first attempt. Hopefully it will be a little easier for Charlotte next time. We arrived home on Thursday evening and settled the girls before a quiet and peaceful night. Charlotte slept well but woke a little nauseated so we gave her the anti-nausea drugs that the hospital had orga...


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Wednesday 21 September, 2009 (DAY 44) – THE PORT IS IN!!!

Posted by Peta Long on Wednesday, September 23, 2009, In : Charlotte Update 

After a day of starvation before having her operation cancelled at 5pm she went to bed exhausted and another day behind in starting her chemo. Charlotte could not eat again whilst waiting for a spot on the emergency operation list again today. Finally, at lunch they started preparing her for surgery. Rod and I were so excited. The thought of another day of starvation was more than we could get our heads around before a year of debilitating chemo. I left her this evening sleeping peacefully a...


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22 sept 2009

Posted by Peta Long on Tuesday, September 22, 2009, In : Charlotte Update 

Well it is 6 weeks down and the clock starts again as we move on to the next phase, Chemotherapy.

It was a trying day for Beck and Charlotte today. She was up as bright as a button at 430am had to fast for her operation which was suppose to be this afternoon. At 5pm we were informed the operation was cancelled. It is still uncertain whether the operation will take place tomorrow, she does have to fast again from 6am.They can not commence chemo until the portacath op has been done.

We have no...


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Saturday 19 September, 2009 (DAY 40) – CHARLOTTE IS HOME ON GATE LEAVE!

Posted by Peta Long on Sunday, September 20, 2009, In : Charlotte Update 

After a tumultuous day of rigorous testing three blood tests for Kidney function via three different entry points on Charlie’s body, a cardiac echo, the removal of Charlotte’s central line and an audiology test - we were finally let out of C1 North on Friday night for weekend gate leave. It was the best 10th Wedding Anniversary present we could have asked for! It was the first time Rod and I had been home together in 40 days (somewhat Biblical proportions…) As I drove Charlotte hom...


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I Made It Out

Posted by Peta Long on Thursday, September 17, 2009, In : Charlotte Update 

Well I made it out after 6 days in the institution, some might say my sanity is compromised, I'm sure it would be had I not had such a good relationship with my old mate "Beer".

Beck didn't get back to the hospital until today. Not only did the Noro virus hit her terribly it also unleashed on Madeleine who is also suffering a bronchial infection. Unfortunately Beck's mum also suffered from the Noro wrath. I took the self prescribed approach of taking the generic mental health/gastro drug, Al...


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Tuesday 15 September, 2009 (DAY 36) – KICK A MAN WHEN HE’S DOWN!

Posted by Peta Long on Tuesday, September 15, 2009, In : Charlotte Update 

PLEASE DON’T READ IF YOU ARE SKWIRMISH…………..

When you think things can’t get any worse they just do! Yesterday Charlotte showed signs of feeling/looking and getting better. She even had a little physiotherapy in her isolation room. But by 12 last night she began vomiting and had diarrhoea again. She was given a needle to stop her from further vomiting. Needless to say that Rod is totally exhausted after his fourth day in isolation. The head nurse wouldn’t let me come in to swap...


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Saturday 12 September, 2009- (DAY 33) – A FEW STEPS BACKWARD!

Posted by Peta Long on Sunday, September 13, 2009, In : Charlotte Update 

Charlotte and I had a reasonable night. She was exhausted after days of high temperatures (38-39.5 degrees) and fell asleep at 6.15pm whilst I was changing her nappy (arms up and hands behind her head!) She only woke when the nurses did her obs and fell quickly back to sleep after I whispered to her quietly that I was still near by. She still had temperatures on and off all day but was still quite alert and enjoyed the steady stream of visitors in the afternoon. In particularly, her bubble b...


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HURSDAY 10 September,2009 - MRI TODAY!

Posted by Peta Long on Thursday, September 10, 2009, In : Charlotte Update 

It appears that ALL the prayers, positive thinking, novena, love, support and miraculous work of the neurological team have been enough to rid Charlie of ALL of the tumour. Erica got it all!!! She is a genius. Anni (neurologist) suggested that Erica take a bow but she was too modest. So, Rod and I have kissed and cuddled her anyway and thanked our very own Brains Trust in kind.

I had just finished reading a medical journal article on aniplastic ependymoma's when I received the MRI results. "...


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No MRI Today

Posted by Peta Long on Wednesday, September 9, 2009, In : Charlotte Update 

Ah the trials and tribulations! Those of you who have been through the hospital system would understand how often procedures are scheduled then pulled at the last minute. We have been assured Charlotte is the first cab of the rank tomorrow morning.

Beck and I were able to speak to the head neuro surgeon Erica in person this morning for the first time since the operation. She was quite pleased with how it went although expressed some concern there may be some residual tumor around the lower r...


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Tuesday 8 September, 2009 - OPERATION DAY NUMBER 2

Posted by Peta Long on Tuesday, September 8, 2009, In : Charlotte Update 

Charlotte's operation went very well. The neurosurgeon has removed all of the tumour that is visible and the operation ONLY took 8 hours. Although this is an entire day operating and under anaesthetic, it was alot shorter than her first operation of 15 hours. As a result, she looks a lot better and hopefully this may mean a quicker recovery.

When we took Charlotte to theatre this morning they had given her a pre-med to relax her but this was not enough for our Charlotte. When they tried giv...


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***Post Op - Quick Phone Update from Rod - good news! ***

Posted by Peta Long on Tuesday, September 8, 2009, In : Charlotte Update 
Hi Everyone,
Charlotte's operation is over, and early report from Rod is that she is recovering well! Looking better than the first op, and already off resp asistance - kicking around like a little trooper. Surgeons beleive that have taken all of the tumour, MRI tomorrow for follow up. Rod and Bec releived and thrilled tonight, all going to plan Bec may write a more detailed Post later this evening. Great stuff Charlie Bel, that's our girl! xx Pete
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Operation Eve

Posted by Peta Long on Monday, September 7, 2009, In : Charlotte Update 

I had a great Fathers Day with my girls, beginning with Charlie making a phone call, unbeknown to her mother, at 715am to my mobile. I was startled and immediately thought something to be wrong. Instead it was Charlotte who called and all I heard was her giggling and saying Dad DA Dad Da. Until i asked Beck later that morning, Beck didn't even know of the call. Charlie has been amazingly exuberant and sprightly this last week, which is obviously great to see.

Today I have been very anxious a...


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Friday 4 September, 2009 – (DAY 25) Better than Miss World?!

Posted by Peta Long on Friday, September 4, 2009, In : Charlotte Update 

5am and Charlotte is the only child awake on the ward. Happy and ready

to play she is smiling as I peel myself from a decent, but broken

sleep. What do you do with a 16 month old at 5am in a hospital? The

answer: have a shower with her in the pram, walk the corridors of SCH

and Royal Women’s, use the wireless internet at 6am to check new

messages, buy a coffee at the first café to open at 7am and wait for

the breakfast trolley to arrive at 7.30am. Charlotte is still happy

and ready to tac...


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By all accounts another good day.

Posted by Peta Long on Thursday, September 3, 2009, In : Charlotte Update 

The results of today's MRI have been favorable with no indication of any tumor in the spinal area. Our surgical team (the ultimate brains trust) have been engaging in some heavy duty negotiations and have managed to secure the operation for Tuesday. Again the next operation will be an epic hence the difficulty in blocking out a theater for the whole day.

Both Beck and I are quite exhausted today, things are starting to take their toll especially after tucking Madeleine into bed tonight she a...


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A Good Day

Posted by Peta Long on Wednesday, September 2, 2009, In : Charlotte Update 

Well it couldn't be too much worse than yesterday!

Poor Charlie had to fast from midnight for her MRI, so from 7amm till 10am I was trying my best to keep Charlie entertained, not easy. At 10am they very appologetically said they were unable to secure an anathesist so it was locked in for 8am Thursday.

I was wrapped, I quicly called Beck told her to pack the beach gear we are all having a family day at the beach. We had an awesome day at Coogee beach, I have always considered a family day at...


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Tuesday 1 September, 2009 (DAY 22 ) – SPRING: A DAY TO BE STRONG!

Posted by Peta Long on Tuesday, September 1, 2009, In : Charlotte Update 

Charlotte had a good night and an energy-packed morning. From 6am she

wanted out of the cot. So we went walking. We played in the toy room

and walked the corridors to satisfy Charlotte’s desire to walk and

investigate the goings-on of life outside of her cot. She had a good

physio session and clocked-up 64 consecutive steps. I am not sure who

was happier: Charlotte, the physio or me?!

 

We kept ourselves busy trying not to think about our meeting with the

Neurosurgeon, Radiation-Oncologist...


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