Browsing Archive: August, 2010

ROUND 22 Assault on the body!

Posted by Peta Long on Sunday, August 29, 2010, In : Charlotte Update 

After last weeks full blood transfusion Charlotte had a spring in her step and sweet rosy cheeks, once more. However, her bloods were not at safe enough levels to operate and only just good enough for round 22 of chemo. So, Charlotte and I went to SCH on Tuesday for four days of chemo, Rod went to Melbourne for a course and Madeleine went to Nannys for indulgence. I am pretty certain that I was exhausted from packing everyones bags before we even got to hospital on Tuesday.

 

Charlotte was...


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NO OPERATION FOR CHARLOTTE THIS WEEK

Posted by Peta Long on Monday, August 16, 2010, In : Charlotte Update 

This is just a quick update to let everyone know that Charlotte will not be having surgery to implant a shunt for the hydrocephalus tomorrow, as scheduled. After returning home following blood tests this morning we were called, and requested, to rush Charlotte back to hospital for a FULL blood transfusion. She had virtually no neutrophils, no platelets, very little haemoglobin and a depleted white blood cell count. I am not sure how that little girl has been able to function. Those blood coun...


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1 Year since diagnosis

Posted by Peta Long on Thursday, August 12, 2010, In : Charlotte Update 

What a year! We have experienced moments of absolute despair, anguish, elation, relief and complete exhaustion. Yet at the end of each day we have a beautiful , exuberant, charming and cheeky Charlie whose smile renews our strength to make it through the next day. She has grown into an extraordinary girl who lights up the room and puts a smile on even the grumpiest face.

 

The year has had an effect on Madeleine, she becomes anxious if either Beck or I go to hospital and misses Charlie terr...


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Round 21 and MRI

Posted by Peta Long on Friday, August 6, 2010, In : Charlotte Update 

Charlotte had chemo and a photo shoot for the Daily Telegraph last Thursday and was home just after dinner. She is a busy girl but life out of hospital is far more pleasant for Rod, myself and Madeleine too.

She has been well and has enjoyed being at home with Madeleine and going out when the weather permits!  Today she had an MRI under general anaesthetic to check for tumour growth and the build-up of fluid on her brain. Well, there is no tumour re-growth (YEAH>>>>!!!@##$$$$) but more flui...


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