Charlotte and I spent most of the day at Sydney Children’s today, not having active treatment but visiting a friend that is back having treatment for a relapse. I felt sad to be in hospital visiting such a beautiful family but elated that I was sitting there with Charlie and she was happy and looking great; two years since that dreadful diagnosis. We still have a long way to go and while we were in hospital today the medical sleep team at Sydney Children’s spoke with us about trialling so...


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