Browsing Archive: November, 2012

DAY 8 - A good end to the week!

Posted by Peta Long on Friday, November 23, 2012,

I left hospital today feeling relieved and somewhat satisfied; this was the first time since Charlotte had started radiation. I am not sure whether it is because it is Friday and Charlotte has two days off from this process or simply because today Charlotte’s treatment and recovery was well-managed and she recovered well. After another good chat with the anaesthetic doctor today we had doses of medications covered, a contingency plan for recovery and meds ready for sedation to help Charlo...


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Radiation and anaesthetic overload! – Wednesday 21 November, 2012

Posted by Peta Long on Wednesday, November 21, 2012,

After the last few days it has become apparent that Charlotte was not going to come out of anaesthetic in any appropriate or comfortable manner. Each day she has continued to suffer from emergence delirium and it has got a little worse and longer each day. She is so violent and dangerous to me and herself that Monday was the final straw. Left somewhat to my own devices and left to tackle the episode on the ward I really did feel broken. I was devastated at the state she is in and exhausted ...


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Day 2 and 3: Ground Hog Day - 18 November, 2012

Posted by Peta Long on Sunday, November 18, 2012,

Charlotte had a better day on Wednesday and the recovery nurses did everything in their power to bring Charlotte out of anaesthetic slowly and calmly. She was tired and a little nauseated during the afternoon but declared; “It’s been a day Mum, let’s turn on some Katty Perry!”. So there she was dancing around the living room to Last Friday Night and California Gurls featuring Snoop Dogg!! She went to bed early and we woke during the night to her screams as she sat legs akimbo vomiti...


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Day One of Radiation - 13 November, 2012

Posted by Peta Long on Tuesday, November 13, 2012,

I woke this morning to Charlotte’s little voice calling; “Mum, look!” and as I looked down at her she had rolled up her top and was showing me her, supposedly sterile, bandage peeled away from her central line. I gasped and jumped out of bed to search for a sterile, sticky bandage to reseal the wound until we arrived at hospital. The drive in went well – little traffic and only one meltdown from Charlotte about her starving state! Once we arrived the nurse on C2 North was excellent ...


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A change of plans – 9 November, 2012

Posted by Peta Long on Friday, November 9, 2012,

By the time I had finished work on Wednesday evening the plans for Charlotte’s surgery and planning for radiation had changed numerous times. It was finally arranged that we had to be at the hospital on Thursday morning by 8.30 to collect bloods forms, have bloods taken and be ready for admission to Ambi Care by 9.30 am. Charlotte then had to go to Prince of Wales for a vascular scan to ascertain which side her central line would be inserted. Previously, Charlotte had been given chemo thr...


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Radiotherapy meeting SCH – Monday 5 November

Posted by Peta Long on Monday, November 5, 2012,

Rod and I had our meeting with the radiologist, Dr Smee this morning. The meeting went really well and Dr Smee was extremely empathetic about the duration of our journey with Charlie and the obvious concerns about treatment that we may have. He left Rod and I feeling quite reassured and happy to move forward with this treatment. He was extremely accommodating with the timing and commencement of treatment, willing to push this through to get us home and finished by Christmas (if all goes wel...


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