Browsing Archive: October, 2012

Charlotte’s Treatment - Thursday, 25 October, 2012

Posted by Peta Long on Thursday, October 25, 2012, In : Charlotte Update 

After much anticipation we finally met with Charlotte’s oncologist Dr David Ziegler this afternoon. We were pleased to know that chemo would not an option for Charlotte’s treatment and no one could be more happy then Charlotte herself. We had a fairly reassuring discussion about the tumour and radiation to follow. Histology revealed that Charlotte only has one area of tumour growth, it is still anaplastic ependymoma (III) and it appeared fairly contained within a membrane when removed. Da...


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Charlie Progress - Tuesday, 23 October 2012

Posted by Peta Long on Tuesday, October 23, 2012, In : Charlotte Update 

Sorry about the delay in feedback about Charlotte’s progress but Rod and I are taking a bit longer to get over being in hospital and still getting our heads around Charlie’s condition. She is still doing well after surgery despite a tough run of fasting for yet another MRI under anaesthetic. She has lost a lot of weight and we are trying to feed her up and keep her rested. She has been struggling with a chest infection which she needs to totally get through before we move onto the next ph...


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Tuesday, 16 October 2012 – Operation Day

Posted by Peta Long on Tuesday, October 16, 2012, In : Charlotte Update 

Rod, Charlotte and I were admitted yesterday into the Care by Parent ward at the Sydney Children's Hospital, which is like a little hotel compared to what we have experienced with Charlotte. This ward is designed as a calm and comfortable place for pre-operation care (primarily by parents). She underwent anaesthetic the best she ever has – no screaming, fairly calm and holding the oxygen mask all on her own. It was a relatively short surgery by Charlotte’s standards and almost four hours ...


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Latest Update

Posted by Peta Long on Sunday, October 14, 2012, In : Charlotte Update 

Hi there once again,

It's been a while, thank you to all of you who have continued to read and write and follow Charlie's progress. I personally have removed myself some what from this page, but am pleased when I return periodically to see the on going messages of support.

Obviously we are all saddened by the latest result. Our emotions are in turmoil, those of anger, fear, and sadness to name but a few. However we find much happiness in Charlie and Madeleline, they are not burdened with our wo...


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Some sad news for Charlie!

Posted by Peta Long on Friday, October 5, 2012, In : Charlotte Update 

Charlotte had an MRI on Thursday and unfortunately she has relapsed. There is tumour growing on her frontal lobe. She is scheduled for a another scan on Thursday and surgery on the 16th. They need to ascertain whether the tumour has spread to her spinal cord and have another look at what they need to resect. We are devastated! It was hard enough the first time but this time I just feel so sad for Charlotte. We have come so far with her. She is doing really well at preschool, swimming and at h...


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